There has been a lot of interest recently in surgery for migraine headache. The following article written by Dr. Robbins offers his viewpoint on the subject. The article is in the February, 2014 issue of Headache: The Journal of Head and Face Pain….
The excellent article by Mathew, “A Critical Evaluation of Migraine Trigger Site Deactivation Surgery,” casts doubt on the data supporting migraine surgery. Migraine surgery is being promoted by plastic surgeons. A common statement on certain surgery sites that “of the 60 to 80% of patients who respond to Botox, 90% will benefit from migraine surgery.” The word “cure” appears all too often.
The following are observations about migraine surgery:
1. Migraine is a complex syndrome involving genetics, brain chemistry, neuro-inflammation, behavioral aspects, etc., and it is unlikely that a simple surgery would fix all of these factors.
2. Response to Botox (which most of the surgeons use as a guideline) should not necessarily predict a successful surgery; the mechanism of action of Botox for migraines probably involves, among other factors, an anti-inflammatory response, not simply via muscle relaxation.
3. The surgery is supposed to be primarily for refractory migraine patients but is being done for those with new daily onset persistent headache (NDPH), post-traumatic headache, occipital neuralgia, and other varied headache syndromes.
4. Migraine and NDPH patients who have not had trials of medications are being operated upon, some of whom have had headaches for less than 1 year, and the patients have not necessarily been under the care of a neurologist or headache specialist.
5. Surgery about the head is not new; migraine patients who have undergone various cosmetic procedures (which are similar to the surgery being promoted) have not reported (in my experience) an improvement in headaches.
6. The disappointment after failed surgery cannot be underestimated. A young man in my practice had NDPH and was 50% improved over 6 months. We could not dissuade him from undergoing the surgery (he was enthralled by the website claims), and after the surgery failed, this patient committed suicide. He was severely depressed, but the disappointment may have been a contributing factor.
7. Adverse events from the surgery should not be minimized; these are sensitive patients, often with allodynia, and cutting structures about the headache may lead to increased headaches or new neuralgia pains.
8. My “anecdotal scorecard” for the surgery results in about a 10% success rate, not the 90% often stated on the surgery websites.
We need multicenter trials to evaluate migraine surgery. Without adequate studies, the surgery remains an unproven and experimental procedure.
Angela, Dr Robbins I have read some of your articles and videos. If I could go back to Chicago and start at the beginning I would have at your clinic instead of Diamond. I had NDPH and was treated for 5 years. I made a mistake and went to Danville Pa to see Dr Nancy Kelly. After evaluating me she was sure I had Occipital Neuralgia and performed a Nerve Block. It worked for 3 weeks no pain. She highly recommended bilateral Nerve Decompression Surgery by Dr Darren Jacobs. I have Alloydnia. I now go to The Anesthesiology Department at Cleveland for Gon Block. I believe I was persuaded all for insurance money for that surgery.
I used to be a patient at Diamond. I was told I had NDPH at Cleveland Clinic so I decided to get help. Throughout my 5 years at Diamond I saw 2 Dr’s they never formed any opinions of their own. My family was more impressed with the PA’s. The worse part of it all is I had high blood pressure so I took by bystolic. That med has serious side effects. It makes me made that internal medicine Dr’s at Diamond would not let me know that I had a deficiency in vitamin D 3. I would tell people get a second opinion.
Nerve decompression surgery gave my daughter her life back. Her story is at the above website.
Where did you go