2 Comments

1. 

   Louise Cerling on February 4, 2017 at 4:27 pm

   What is the update on clinical trial for Amgen type 334 to be used to lower pain for Peptides clustering around the brianstem in nonstop cluster with symptoms as child with pressure on head from a vice, a semi truck, and now 30 years later, donkey kicks with several days in higher level 9 pain range.? . MRI recently is all normal. Whiskey takes level lower on a good day. Besides alcohol, what might lower level now!
   Timely request!
   Long time Diamond Headpain patient, 14 hospitalization so, with 120 drugs tried from age 9-17, then 12 years without drugs. Bipolar at 17! Doing life at age 37, out of bed several days a week, and condition has had no hospitalization except same cluster still nonstop and worsening in severity. Identical lifelong symptoms, “Hear my heart beat and unbearable pressure on whole head. “

   Reply
   • 

     larry robbins on February 4, 2017 at 5:25 pm

     The AMGEN trial, as well as the other 3 CGRP ones, have about finished Phase 3; the word is that they are all pretty successful, at least for a decent % of people….I have no doubt they will help many people, the question is long-term safety…..

     The Ketamine is interesting..we have been using the nasal spray of it for awhile(in office only), reasonable results, but seems to be better for moods/depression that headaches( altho it does help a fair amount of people’s headaches, but the effect is usually somewhat short-lived)…L.Robbins,M.D.

     Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.